Thursday, May 10, 2012

Fighter Jett

A while ago I may have mentioned that we had received some sad news related to some friends of ours, but I didn't go into much (or any) detail.  Normally I keep things like that pretty close to my heart and don't share them on the blog.  However, our friends have recently created a blog solely for the intent of sharing their son's message with the world.  I can't help but share it today.

Our friends Cody and Tennille who've shared many adventures with us over the years recently became parents in December.  Their son, Jett, was born with PontoCerebellar Hypoplasia type 2 (PCH).  It's a pretty hard diagnosis to swallow as a parent as it basically means that he will never sit, crawl, walk, talk, or interact socially.  Worst of all, the life expectancy for a child diagnosed with this rare disease is usually no more than 2 years.  To say it's heart breaking is an understatement.

However, Cody and Tennille have been amazing and strong throughout this entire journey.  They've adapted and are truly the best parents Jett could ever have been blessed with.  Cody's sister recently hijacked their blog to share with friends and family a special Jett t-shirt to help with the mounting costs of Jett's ER visits (sometimes 2-3 times weekly).

Cody and Tennille after being surprised by a family's gift
They also shared this message to go along with the shirts:

"Let's help Jett travel the world and do as many amazing things as he can in his limited lifetime. If he can't do it himself, he can do it "on your heart". Email pictures of you wearing the t-shirt to Cody or Tennille, and they will be able to cross those places off Jett's "Flight Plan"!"

If you have a second, please click over to Jett's blog and read his story.  He is such a fighter and I've been so blessed to get to know him over the past few months.  His life has truly made me reflect on the many blessings I have and he reminds me what is really important in this world (hint: it's not weight loss).  Anyway, thank you for taking a second to read this post.  All of you are so awesome.

Oh, and did I mention that Cody and Tennille are pretty much a twin couple to Hubster and me?  Check it out:
December 2006 (cruise!!) 011
Redheads unite!
December 2006 (cruise!!) 103
Scooter Style!
December 2006 (cruise!!) 106
Belize 446
Dorks just like us!
We've been blessed to travel with them several times over the course of our lives, and while they won't be able to travel with us for a long time they will definitely be in our thoughts wherever life takes us.  I know that my Jett t-shirt will definitely be joining me on every trip I take!

1 comment:

  1. Such a heartbreaking story- but what a sweet little boy and such wonderful parents he was blessed with!